Many years back, I watched that documentary ‘The Boy Whose Skin Fell Off’ about a fellow called Jonny Kennedy who lived with the skin condition EB. There’s a bit in that film where he talks about what he hopes his afterlife would be like and, for whatever reason, a couple of coffees as I was re-reading the Wikipedia article about it triggered an idea I had to scribble down...
...To step into your shoes and walk out the door, leaving the comfort of your cocoon.
Into the world again, after long to interact with people face to face.
To realise you can’t, turn around and run away.
I think, I have become insane with long intervals of horrible sanity.
Currently reading ‘Nina Simone’s Gum’ by Warren Ellis at long last. What a phenomenal bit of work this is, and inspiring to boot most importantly as you can see. Thanks for sharing your stories with us all Warren!
